What is Rekindle?
The first of its kind, Rekindle is an evidence-based online resource that provides users tailored support based on their unique sexual concerns. Rekindle is currently being tested as part of a research study. When people log into Rekindle they view participant information and give online informed consent before progressing further.
The Rekindle study is examining how we can best address sexual concerns after cancer. Following informed consent:
- Participants will be randomised to one of three groups:
- Rekindle Plus:
Participants receive three telephone support calls from CCNSW Information & Support consultants to help navigate and use Rekindle in addition to their personalised Rekindle Pathway
- Attention Control:
Participants receive compiled existing resources online. 10 weeks after they join the study, they will be given access to their personal Rekindle Pathway
- Participants will be asked to complete online surveys on three occasions during the study:
- Upon enrolling in the study
- 10 weeks after they start the study (i.e. the end of the intervention period)
- 6 months after randomisation
Users of Rekindle will also be asked to provide feedback in a brief telephone interview 10 weeks after randomisation.
What’s inside Rekindle?
Rekindle is a multimedia resource, engaging users with:
- Video testimonials from cancer survivors and partners experiencing similar sexual concerns
- Video messages and advice from leading health professionals
- Narration by a trusted and relatable Australian media personality, Noni Hazlehurst
- Activities to get people thinking and practicing new skills
- Question prompt lists to take to doctor’s appointment for additional support
- Knowledge and principles based on the latest psychological research
Why refer cancer survivors and their partners to the Rekindle study?
- There’s a gap between who needs support for sexual concerns and who gets it - Rekindle attempts to address this gap by providing tailored and private support
- Resources are limited. Rekindle was built to be accessible and sustainable
- Rekindle is free to use
- Talking about sexual concerns can be tough. Rekindle answers sensitive questions surrounding sexual wellbeing and normalises common sexual concerns
- The online format supports people in remote and regional areas
- Rekindle may cover issues relating to sexuality that you do not have time to address in your clinical practice
- Rekindle translates evidenced-based treatments into one resource where users can learn new skills and decide what medical treatments might help and how to use them
- Rekindle was designed to encourage uptake and retention using specifically targeted materials designed with Australian users in mind
- Rekindle can be used anytime at anywhere (standard computer, laptop, tablet or smartphone) wherever there is internet connection
- Rekindle may reach more survivors and partners than face to face or phone
Who is the Rekindle study suitable for?
- Survivors and/or partners 6 months post primary treatment
- Patients receiving long-term adjuvant or palliative treatment
- People who are single or who have been in a stable relationship for at least 6 months
- Heterosexual and same-sex attracted people
How to refer to the Rekindle study?
There are a number of ways to refer to people to the Rekindle study:
- The simplest is to give participants the URL: www.rekindleonline.org.au. Participant information, informed consent and an introductory video can all be found at this link.
- Give out a take-home postcard – we can provide you with as many of these as you would like, email email@example.com
- Display Rekindle posters on walls, billboards and flat screens in clinics
- Display Rekindle postcards in clinics and waiting rooms
- Email support group members (we can provide text for you to use and tailor for your clinic)
- Potential participants can call 1300 85 44 37 to speak to one of the research team about the study
- Potential participants can email firstname.lastname@example.org to reach one of the research team about the study
How to tell potential participants about Rekindle?
After treatment is complete and discharge/survivorship care planning is discussed:
“Many cancer survivors and their partners experience changes to their sexual wellbeing. There’s this new online resource called Rekindle that provides information about sexual changes after cancer and offers strategies that can help.”
“It seems like you have a lot of questions about why some of these sexual changes are happening. Those are great questions and there’s this new online resource called Rekindle that can help answer those questions.”
“It can be hard talking about sexual concerns with me as your provider or your partner. A new online resource called Rekindle can provide information about your sexual concerns and also teach you how you can communicate your sexual concerns to get the support you need.”
“Unfortunately, cancer can impact both a patient and their partners, particularly in the bedroom. A new online resource called Rekindle can help patients and partners adjust to sexual and relationship changes after cancer. You can use Rekindle individually and learn strategies how to address sexual changes for yourself and as a couple.”
Tips for discussing sex and sexuality
- Use the same effective communication skills that you employ in your daily practice
- Try to have first discussions with the patient in private
- By raising sexual issue you are normalising sexual concerns and opening the door for more discussion
- Ask if the patient would like to involve their partner in discussions
- Tailor discussions according to timing of treatment milestones
- Don’t make assumptions about the existing knowledge a patient or partner may have
Strategies for discussing sexual wellbeing in group settings
- Provide up to date information
- Normalise prevalence by citing incidence rates
- Discuss impact on partners
- Model clear communication
- Use video testimonials or invited speakers to model sharing
- Use examples of previous patients and their partners as teaching opportunities for the group
- Figure out what works best for you. It takes time to find the best strategy
To learn more about Rekindle or view the site please email email@example.com for a sample login.